disabilities

Everybody pees, but who spends time thinking about it?

Anyone who plans their outings in consideration of public restroom locations thinks about it. Wheelchair users, pregnant women, or parents of small children, for instance. And, of course, trans and gender noncomforming folks who are continually warned by policymakers to unzip it only in the bathroom that corresponds to the gender on their birth certificates.

Plans for KanCare 2.0, the proposal to keep management of the state’s Medicaid program in private hands for years to come while adding new eligibility restrictions, halted Wednesday.

At least that’s what Republican Gov. Sam Brownback indicated in a mid-day news release, which said the plan was being scrapped after lawmakers worried about cost increases nearing $100 million a year.

When Jordan Reeves was born, her mother was the first to notice something was different.

Jordan's mother Jen performed the typical finger-toe count moms do on their newborns and came up five digits short. The baby was missing the bottom half of her left arm, which stopped just after the humerus.

Amidst the chaos of the discovery, Jen and her husband found peace.

On any given school day at Kansas City Kansas Public Schools, students with disabilities receive an array of medical and support services, from physical therapy to help from nurses.

The services are meant to ensure access to education for all children, said Michelle Colvin, director of special education for the district.

“All means all,” Colvin said. “It benefits us to include everyone in our education system.”

The Kansas City Area Transportation Authority is launching an app next week to help people with disabilities get a ride. The launch follows a year of development and two months of trials in a partnership with the company Transdev.

Anyone can use the RideKC Freedom app, but it’s specially designed for the more than 300,000 people with disabilities who use the KCATA’s subsidized paratransit services. CEO Robbie Makinen says the Uber-style app is an innovation for the public transit agency. 

Missouri Treasurer Eric Schmitt was in Kansas City Tuesday to promote MO ABLE, a new savings program for people with disabilities.

“Look, when my son was born, we opened up a college savings account. You have all those hopes and dreams,” says Schmitt. “Emotionally, psychologically, that’s tough for families.”

Schmitt's 12-year-old son is nonverbal on the autism spectrum.

The tax-advantaged accounts function similarly to Missouri’s 529 college savings plan and can be used to pay for assistive technology and long-term care.

Roy Alcorn shot pool with friends last week as sunlight streamed through the open door of a small building at Equi-Venture Farms.

A month earlier, Alcorn was living at Osawatomie State Hospital 24 hours a day, seven days a week.

Alcorn’s new arrangement is part of a pilot program spearheaded by Ben Swinnen, executive director of Topeka-based Equi-Venture, and Tim Keck, head of the Kansas Department for Aging and Disability Services.

A public letter by the head of the Kansas Department for Aging and Disability Services praising KanCare’s effect on Kansans with disabilities has drawn a string of rebuttals from people who provide disability services.

Tim Keck’s letter was published Oct. 24 on the Wichita Eagle editorial page.

Judy Talbot is trying to get her daughter out of a state facility for Kansans with intellectual and developmental disabilities. Zack Zbeeb is trying to get his son into one.

But both ultimately have the same goal: to do a “medication washout” to determine whether the prescription drugs their autistic kids take are helping to control their recent dangerous psychotic episodes or actually causing them.

Zbeeb, from Wichita, wants his 15-year-old son to be weaned off his medications at a place like Parsons State Hospital and Training Center.

The employees of Cornerstone Supports gathered last week at a house in Olathe with their clients — adults with intellectual and developmental disabilities — to plan their last day together.

Cornerstone, based in Olathe, will close later this month, and its 19 clients will have to find other companies to help them with daily tasks so they can stay in their own homes.

The regular gatherings at the Olathe house where three Cornerstone clients live will end Oct. 28.

“We should do something,” said Brandon Thompson, one of the clients.

Several Kansans are scheduled to meet Tuesday with federal officials and counterparts from across the country to discuss issues related to the privatization of state Medicaid programs.

University of Kansas researchers plan to use a $1.5 million federal grant to help Kansans with disabilities catch up to their non-disabled peers in several health categories.

Jean Hall, director of KU’s Institute for Health and Disability Policy Studies, will lead a team of partners from nonprofit organizations and government agencies to improve physical activity, nutrition and oral health for Kansans with disabilities.

Kansas is one of 19 states to get the grants from the Centers for Disease Control and Prevention.

The uninsured rates in Kansas and Missouri continue to drop.

But they’re declining faster in states that have expanded Medicaid, the health insurance program for low-income families, seniors and people with disabilities.

New data out Tuesday from the U.S. Census Bureau estimates that Kansas’ uninsured rate dropped to 9.1 percent in 2015, down from 10.2 percent the year before and 12.3 percent in 2013.

The Disability Rights Center of Kansas is seeking more information from the state about its backlog of Medicaid applications to determine whether Kansas is breaking federal rules.

Rocky Nichols, the center’s executive director, said the organization has filed an open records request to examine whether the state is doing what the federal Centers for Medicare and Medicaid Services requires for Medicaid applicants stuck in the backlog.

A proposal to reimburse some KanCare providers at a higher level based on patient outcomes drew skepticism from a crowd of hundreds who gathered Tuesday afternoon in a Topeka hotel ballroom.

Tuesday’s public meeting was the first in a series that state officials are hosting as they prepare to renew their federal application for KanCare, the state’s $3 billion managed care program that privatized all Medicaid services under three insurance companies in 2013.

Similar gatherings are scheduled Wednesday in Kansas City, Kan., and Wichita and Thursday in Pittsburg and Hays.

Gov. Sam Brownback’s administration will not fight a legislative directive to postpone the integration of Medicaid waiver services for Kansans with disabilities, according to an email sent by an administration official.

The Legislature passed a budget early Monday that included a provision prohibiting spending in the next fiscal year on any waiver integration plan to be implemented before July 2018.

Legislative budget negotiators have agreed to insert a provision in the state budget preventing Gov. Sam Brownback’s administration from consolidating Medicaid support services for Kansans with various disabilities.

The Medicaid waiver integration plan has been a point of contention between the administration and a legislative subcommittee appointed to study the issue. The subcommittee issued a report recommending the integration be delayed a year to Jan. 1, 2018, and requesting more details on the plan.

When Shannon Lindsey moved from Missouri to Kansas two years ago, she decided she wanted to go to Johnson County Community College to get a nursing degree that would make her more employable.

Lindsey, now 49, has several disabilities, so she contacted Kansas’ vocational rehabilitation office for assistance. In Missouri she had the same vocational rehabilitation counselor for years — a state worker who understood her needs, what was available to help her and how to get it to her quickly.

A statewide registry is in the works to make it easier for Medicaid patients to find qualified, reliable personal care workers.

That’s good news for Bill Stovall of Topeka and others like him who help direct care for their family members.

Stovall has a long list of complaints against personal care workers who have cared for his sister in recent years, including punctuality problems and a lack of training.

Hundreds of Kansans with developmental disabilities rallied Wednesday outside the Capitol, as legislators said they are close to reaching a deal with Gov. Sam Brownback to postpone changes to disability services.

Rep. Les Osterman, a Republican from Wichita, told the crowd that a legislative proposal to delay the administration’s Medicaid waiver integration plan until 2018 was a done deal.

“I stopped the waiver integration,” Osterman said. “At least until 2018.”

The Kansas Department for Aging and Disability Services is reviewing a waiting list for developmental disability services after counties reported discrepancies between how many residents they have waiting and how many are on the state’s list.

There are more than 3,000 Kansans with intellectual and developmental disabilities (I/DD) on the KDADS waiting list for Medicaid-covered support services meant to allow them to remain in their homes and communities rather than live in institutions.