Growing up with Sickle Cell | KCUR

Growing up with Sickle Cell

Jan 17, 2013

The experience of growing up from a child to an adult includes awkward experiences with friends, family and one's own body add to that the challenge of living with a chronic disease. Brian Ellison speaks with one teenage girl who is growing up with Sickle Cell Anemia.

Bree Person is a Bronx teenager named who shares her experience of growing up with Sickle Cell. Her story was recorded and shared through the Radio Rookies program out of New York Public Radio. She joins Brian on the phone to discuss the disease with Donna McCurry, Sickle Cell Program Manager at Truman Medical Center.

Sickle Cell Anemia is a disease that affects how oxygen passes through the bloodstream. Those affected have a much shorter life span, and experience chronic pain and fatigue. In the United States, most people living with the disease are African-American, and 100,000 African-Americans are currently affected and 1 in 500 African-Americans are born with Sickle Cell each year.

In addition to sharing the statistics about Sickle Cell Anemia, Bree and Donna share their personal experiences of living with the disease or working with those suffering from it.